Fitzsimons BT, Fitzsimons LL, Sun LR. Pediatrics. 2019;143:e20183458.
Rare diseases pose diagnostic challenges for physicians. This commentary offers insights from parents of a young child who died due to a delayed stroke diagnosis as well as from the patient's neurologist to raise awareness of childhood stroke and discuss the importance of partnership to heal from loss and advocate for improvement.
Hueckel RM, Mericle JM, Frush K, et al. J Nurs Care Qual. 2012;27:176-81.
Some hospitals have begun allowing patients and families to directly summon a rapid response team. This implementation study reports on the training process for establishing a family-activated rapid response team at a children's hospital.
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