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Rockville, MD: Agency for Healthcare Research and Quality; September 2016. AHRQ Publication No. 16-0035-2-EF.
Patient safety in ambulatory care is receiving increased attention. This guide includes case studies that explore how Open Notes, team-based care delivery, and patient and family advisory committees have shown promise as patient engagement and safety improvement mechanisms in primary care settings.
Transitions of care: engaging patients and families.
Quick Safety. November 30, 2015;(18):1-3.
The Family Caregiver Activation in Transitions (FCAT) tool: a new measure of family caregiver self-efficacy.
Coleman EA, Ground KL, Maul A. Jt Comm J Qual Patient Saf. 2015;41:502-507.
Insensible losses: when the medical community forgets the family.
Elias P. Health Aff (Millwood). 2015;34:707-710.
Family participation during intensive care unit rounds: goals and expectations of parents and health care providers in a tertiary pediatric intensive care unit.
Stickney CA, Ziniel SI, Brett MS, Truog RD. J Pediatr. 2014;165:1245-1251.
Guide to Patient and Family Engagement in Hospital Quality and Safety.
Rockville, MD: Agency for Healthcare Research and Quality; June 2013.
Healthcare 411. The Patient Perspective.
Rockville, MD: Agency for Healthcare Research and Quality. September 29, 2010.
Family-identified barriers to medication reconciliation.
Riley-Lawless K. J Spec Pediatr Nurs. 2009;14:94-101.
Patients and families as teachers: a mixed methods assessment of a collaborative learning model for medical error disclosure and prevention.
Langer T, Martinez W, Browning DM, Varrin P, Sarnoff Lee B, Bell SK. BMJ Qual Saf. 2016;25:615-625.
The impact of implementation of family-initiated escalation of care for the deteriorating patient in hospital: a systematic review.
Gill FJ, Leslie GD, Marshall AP. Worldviews Evid Based Nurs. 2016;13:303-313.
When doctors share visit notes with patients: a study of patient and doctor perceptions of documentation errors, safety opportunities and the patient–doctor relationship.
Bell SK, Mejilla R, Anselmo M, et al. BMJ Qual Saf. 2017;26:262-270.
The Ask Me to Explain campaign: a 90-day intervention to promote patient and family involvement in care in a pediatric emergency department.
Tothy AS, Limper HM, Driscoll J, Bittick N, Howell MD. Jt Comm J Qual Patient Saf. 2016;42:281-286.
Patient and family advisory councils. The Massachusetts experience.
Wachenheim D. Patient Saf Qual Healthc. December 8, 2015.
Communication relating to family members' involvement and understandings about patients' medication management in hospital.
Manias E. Health Expect. 2015;18:850-866.
Test result communication in primary care: a survey of current practice.
Litchfield I, Bentham L, Lilford R, McManus RJ, Hill A, Greenfield S. BMJ Qual Saf. 2015;24:691-699.
The wisdom of patients and families: ignore it at our peril.
Donaldson LJ. BMJ Qual Saf. 2015;24:603-604.
Developing and evaluating the success of a family activated medical emergency team: a quality improvement report.
Brady PW, Zix J, Brilli R, et al. BMJ Qual Saf. 2015;24:203-211.
Family-initiated dialogue about medications during family-centered rounds.
Benjamin JM, Cox ED, Trapskin PJ, et al. Pediatrics. 2015;135:94-101.
Patient- and family-centered care: error disclosure and investigation.
Connor M, Wayman KI, Garcia C, Fischer PR; Consortium for Maximizing Family-Centered Care. Patient Saf Qual Healthc. September/October 2014;11:36,38-40,42.
Mittal V. Pediatr Clin North Am. 2014;61:663-670.
Parents' perspective on safety in neonatal intensive care: a mixed-methods study.
Lyndon A, Jacobson CH, Fagan KM, Wisner K, Franck LS. BMJ Qual Saf. 2014; 23:902-909.
Parental involvement in the preoperative surgical safety checklist is welcomed by both parents and staff.
Corbally MT, Tierney E. Int J Pediatr. 2014;2014:791490.
Physician attitudes toward family-activated medical emergency teams for hospitalized children.
Paciotti B, Roberts KE, Tibbetts KM, et al. Jt Comm J Qual Patient Saf. 2014;40:187-192.
Safety Is Personal: Partnering With Patients and Families for the Safest Care.
NPSF Lucian Leape Institute Roundtable on Consumer Engagement in Patient Safety. Boston, MA: National Patient Safety Foundation; March 2014.
Promoting engagement by patients and families to reduce adverse events in acute care settings: a systematic review.
Berger Z, Flickinger TE, Pfoh E, Martinez KA, Dy SM. BMJ Qual Saf. 2014;23:548-555.
Failure to engage hospitalized elderly patients and their families in advance care planning.
Heyland DK, Barwich D, Pichora D, et al; ACCEPT (Advance Care Planning Evaluation in Elderly Patients) Study Team; Canadian Researchers at the End of Life Network (CARENET). JAMA Intern Med. 2013;173:778-787.
PSNET: Patient Safety Network
PSNet is produced for the Agency for Healthcare Research and Quality by a team of editors at the University of California, San Francisco with guidance from a prominent Technical Expert/Advisory Panel. The AHRQ PSNet site was designed and implemented by Silverchair.
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