In their own words: safety and quality perspectives from families of hospitalized children with medical complexity.

Sangeeta Mauskar; Tiffany Ngo; Helen Haskell; Nandini Mallick; Alexandra N Mercer; Jennifer D. Baird; Kristin Bardsley; Jay G Berry; Katherine Copp; Kate Humphrey; Michelle M Kelly; Christopher P Landrigan; Susan Matherson; Amanda McGeachey; Amy Pinkham; Jayne E Rogers; Alisa Khan

Study

In their own words: safety and quality perspectives from families of hospitalized children with medical complexity.

September 6, 2023

Mauskar S, Ngo T, Haskell H, et al. J Hosp Med. 2023;18(9):777-786.

View more articles from the same authors.

Parents of children with medical complexity can offer unique perspectives on hospital quality and safety. Prior to their child's discharge, parents were surveyed about their child's care, medications, safety, and other concerns experienced during their stay. Parents reported experiencing miscommunication with the providers and providers seemingly not communicating with each other. They also reported inconsistency in care/care plans, unmet expectations, lack of transparency, and a desire for their expertise to be taken seriously.

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