Perceived disability-based discrimination in health care for children with medical complexity.

Stefanie G Ames; Rebecca K Delaney; Amy J Houtrow; Claudia Delgado-Corcoran; Justin Alvey; Melissa H Watt; Nancy G. Murphy

Study

Perceived disability-based discrimination in health care for children with medical complexity.

July 19, 2023

Ames SG, Delaney RK, Houtrow AJ, et al. Pediatrics. 2023;152(1):e2022060975.

View more articles from the same authors.

People with disabilities encounter a variety of system- and clinician-level barriers when seeking healthcare. This study reports on disability-based discrimination faced by children with medical complexities and their caregivers. Apathy, clinician assumptions, and lack of clinician knowledge were identified as drivers of discrimination resulting in limited accessibility, substandard care, and dehumanization.

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Perceived disability-based discrimination in health care for children with medical complexity.

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