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What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis.

Ong N, Lucien A, Long JC, et al. What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis. Health Expect. 2024;27(1):e13925. doi:10.1111/hex.13925.

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February 7, 2024
Ong N, Lucien A, Long JC, et al. Health Expect. 2024;27(1):e13925.
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Children with intellectual disability are known to be at increased risk of poor quality of care and patient safety events. This qualitative study, which included parents of children with intellectual disability, explored patient safety issues encountered during their child’s care. Parents highlighted the importance of parental roles as safety advocates, the harm of dismissive attitudes from care providers, the role of communication and coordination to foster trust, and care environments and providers with the resources and training to promote disability-specific patient safety.

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Ong N, Lucien A, Long JC, et al. What do parents think about the quality and safety of care provided by hospitals to children and young people with an intellectual disability? A qualitative study using thematic analysis. Health Expect. 2024;27(1):e13925. doi:10.1111/hex.13925.

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